What the doctor ordered!

About 6 months ago I stopped going to our support group meetings. Mainly, for two reasons- One, I felt pretty good most of the time, and being there made me feel sorry for the people in pain. Two, because the group is at a Urology group different from the one I use for IC treatment, and I decided I was tired of hearing people slam my doctor.

At first is was just a mild annoyance, but it started to add up, and it made me start to think negatively about my Urologist.

Thankfully, my husband was there to be my sounding board, and we were able to figure out why I was annoyed with the meetings, and why it was better that I not go. We also discovered that my doctor has helped me so much with me just following her advice, and that it was worth continuing to use her for my Urologist.

Physical Therapy

I recently finished a round of physical therapy & have since had several IC patients ask me about the results, etc. I decided to do a blog post about it to help answer some questions & break down what all was involved. I am only referring to my specific therapy regime, with my specific therapist, and cannot guarantee results or methods. Having said that, I personally believe that each IC patient suffers from PFD- Pelvic Floor Dysfunction, and I believe Physical Therapy to be a huge step in recovering from PFD.

I decided to start with a FAQ, then I'll follow that with a break down of what we did at each session of PT. I hope this helps those looking for answers, and gives anyone reading this a better idea of what living with & treating Interstitial Cystitis/Vulvodynia is like!

"Pain is your new normal"

Sounds like something your sergeant would say during boot camp, right? Well, it has sort of become my motto these past few years! I told my Physical Therapist what I meant, and she got it. My pain threshold has been raised (or lowered, depending on how you look at it) so that I am used to living in the level of pain that I have on a daily basis- it is my new "normal", the new "me".

I hadn't really noticed how used to pain I was until a couple of days last week I realized I had spent a couple hours with NO PAIN (at all!!) and it didn't hit me until the pain started up again. Wow, I wasn't in pain! That's kinda cool! (It's also kinda weird, as it feels like something is wrong with me!) Made me realize how much PT has helped me, and how far I've come since being diagnosed. So I thought I'd do a post about how I came to this point in my life.

Rant, in the key of P major

Why is it that the one thing you want is always the one thing you cannot have....

My husband and I cannot have children. Aside from some rather serious medical issues, and a couple serious fertility issues (All my fault, of course)... there is also the "if you get pregnant while on this drug your baby will have three legs" issue... and the "I'm literally allergic to my husband's sperm" issue. Sometimes it feels like God is screaming "Don't you even dare try!" at us.

Awareness starts with "U"

Ok, so I can spell (I did watch my share of Sesame Street) and I do know that technically "Awareness" starts with the letter "A"... But, the kind of awareness I'm talking about does start with you.

Let's talk about S-E-X!

Ok, so right now, I'm going to give you fair WARNING. If you have no desire to hear about my sex life (and who could blame you) walk away NOW. If you're my brother or my mother in law, and you really don't want to know this... if you are one of those people who doesn't believe in TMI... just stop reading, hit the back button, and get on with your life!

Weeding your friend garden!

There comes a time, as an IC patient, where you will face the obstacle of unsupportive friends. If you haven't yet, good for you! Unfortunately for me, this accompanied my diagnosis, and only about a year later have I been able to overcome the feelings that I was left with.

My husband has been amazing through this all. Not only does he love me at my worst, but he has shown me what a good friend should be like- kind, caring, supportive, and unselfish.

I was talking with a good friend I've made through our local IC support group, and I told her that going through my friends was a bit like weeding my garden. She laughingly replied with "Except some are exactly like weeds & just keep coming back!" How true!